Starting a new job with a stoma

Starting a new job with a stoma

Starting a new job is a big step for anyone, but when you have a stoma, it can come with an extra layer of thought and preparation. Over the past few months, I’ve taken that step and moved into a new role in events management and social media. It’s been a whirlwind experience – I’ve already been to black-tie dinners, conferences, seminars, and round-table events.

I wanted to share my story of starting this new chapter, including how I approached disclosing my stoma to my manager and team, and the steps I’ve taken to manage my stoma care at work. I hope is that in sharing this I this can offer some support and reassurance to others navigating work life with a stoma.

Sharing my stoma story

When it comes to disclosing a stoma, it’s such a personal decision, and it’s important to do what feels right for you. For me, the opportunity to share my story with my manager actually came up during the interview process, which wasn’t something I had planned.

My new role is within the charities team of a larger organisation, and during my interview, I was asked about my passion for charities, and which one resonates most with me. I felt comfortable in that moment, so I shared that Crohn’s & Colitis UK is a charity very close to my heart. I explained that I was diagnosed with colitis at the age of 19 and have since had two surgeries to remove it completely. I shared how the incredible work of Crohn’s & Colitis UK has helped me and so many others in the IBD community. It felt like a safe space to open up, and being able to share that part of my life was reassuring. It also made me feel more confident about accepting the job, knowing my manager would be supportive.

When it came to my team, I wanted to wait until the subject came up naturally. This happened during a chat with a colleague about volunteering for charities. I mentioned that I was in the process of applying to volunteer with Crohn’s & Colitis UK, and she asked me why I chose that charity. I explained my history with IBD, what it meant for me, and what living with a stoma is like. She was so kind and thanked me for sharing my story – it was such a positive and lovely moment.

Advice for sharing your stoma story

• Only share when you feel comfortable. Open up when you feel ready, and with people you trust. Not everyone needs to know, and that’s okay. For many, it’s a private matter, and it’s completely up to you who you choose to tell.
• Start with your manager or HR. If you’re not sure where to begin, consider telling your manager or HR. This ensures they’re aware in case you need time off for appointments or any adjustments at work.
• Don’t fear negative reactions. I’ve never experienced negativity when sharing my story about my stoma—quite the opposite. People are often amazed by the strength and resilience it takes to overcome challenges like living with IBD.

Navigating the workplace

Starting a new job means adjusting to a new environment, and this can feel daunting when you’re managing stoma care. Here’s what helped me settle in:

• Find a place to store your supplies. In my previous job, I had my own desk and drawers, but in my new role, we hot desk.

One of the first things I did was arrange for a locker so I could store spare stoma supplies at work. I keep a small toiletry bag in my locker with essentials:

3-in-1 Refresh spray (perfect for work as its compact and convenient), ModaVi bags, dry wipes, freeseals®, disposable bags

Knowing I have these on hand gives me confidence. If I ever have a leak or an issue, I know I’m prepared.

• Familiarise yourself with the layout. Take some time to find where the disabled toilets are. This helps you feel more at ease, knowing exactly where you can go if you need to empty or change your stoma bag.
• Be proactive. Having your supplies ready and knowing the workplace layout makes all the difference. It’s a small step that can give you big peace of mind.

Embracing your new role

For me, having a stoma doesn’t hold me back—it’s part of my story, but it doesn’t define me. If anything, it reminds me of the strength I’ve gained and the life I’ve reclaimed.

If you’re starting a new job with a stoma, remember:

• You are not obligated to share your story with anyone until you feel ready.
• A supportive workplace can make all the difference—trust your instincts during the job hunt.
• Preparation is key, having a plan and the right supplies can help you feel at ease.

Most importantly, don’t underestimate your own strength. You’ve already overcome so much already, and this new job is just another step forward. You’ve got this!

Summer
@summers_stoma