Overcoming challenges in the stoma community

Living with a stoma presents a unique set of challenges, but it also offers an opportunity for resilience, strength, and community support. In this blog post, we’ll explore some common challenges faced by individuals with stomas and share personal insights on overcoming them.

The Leak Dilemma

One of the most common concerns in the stoma community is dealing with leaks. Whether it’s a result of an ill-fitting appliance or unexpected situations, leaks can be emotionally and physically drinking. I once had a leak on a night out with my friends and didn’t have spare supplies with me. This resulted in me having to end my night early and head home. I find that sharing experiences and learning from others can be invaluable. Finding the right stoma products tailored to individual needs is crucial, and seeking advice from healthcare professionals can make a significant difference. I’ve also massively learnt from my mistake and now take supplies where ever I go.

Mastering Public Bathroom Bag Changes

Public bathrooms can be a source of anxiety for those with stomas. Changing a stoma bag in a public restroom requires finesse and confidence.

Overcoming this challenge is simple, as ostomates we are eligible to use disabled/accessible toilets which has more space and is more private. Unfortunately, using these facilities comes with the members of the public questioning you and the fact that “you don’t look disabled”. Companies like pelican healthcare & Respond healthcare recognise this challenge and are working hard to ensure that no one should have to face this again. Head over to (be the change link) to find out more on this amazing campaign and to read real life stories on those who have experienced this situation.

Embracing a Supportive Stoma Community

Connecting with others who share similar experiences can provide a sense of belonging and encouragement. Online forums, support groups, or local meet-ups offer platforms for individuals to exchange tips, share triumphs, and offer a listening ear. Building a support network not only provides practical advice but also emotional support during challenging times. I have met so many amazing life long friends just from sharing my story online. It’s incredible how one message from someone who’s experiencing all the thoughts that you are can make you feel less alone in your journey.

Overcoming challenges in the stoma community is a journey of resilience, adaptability, and mutual support. By sharing experiences, embracing a supportive community, and educating others, we can navigate life’s hurdles with confidence and empower others to do the same. Remember, you are not alone, and every challenge conquered is a testament to your strength and courage.

Thank you for reading!

Ange (@thebaglife_) xx