Social Media, Awareness & Campaigning
It’s hard to imagine my life without social media, awareness and campaigning now but, believe it or not, there was a time not so long ago that I didn’t associate with those things. I won’t lie, I was pretty naïve when I was first diagnosed with IBD. At a young 13, I very much took it in my stride not really knowing the impacts it would have on my life. As a result, I didn’t do much research, I didn’t speak to anyone about it and I didn’t know there were other people out there going through a similar thing. Looking back, I wish I’d have known different…
Read more >Going out over the Christmas Period
Going out over the festive period can involve immense planning, a strict rota and many outfit changes. Not to forget having to perhaps accommodate your stoma with outfit choices and keeping a spare stoma kit to hand for the just-in-case moments.
Read more >How to Prepare for Stoma Surgery
My operation was in 2011 so it feels a long time away now but I can still remember quite a bit about it. I was 19 at the time & even though it hadn’t been mentioned until a few months before it became a reality, I wanted it to happen so that I could hopefully start building a life.
Read more >Lauren’s Young Diagnosis Story: Age 8
My name is Lauren and I like to describe myself as ‘your friendly neighbourhood Crohnie’ – I’m 27, work in the financial industry as an employment relations specialist and am currently enjoying being a new member of the ostomate community. However, despite being new to all things stoma (I gained a permanent colostomy only seven weeks ago), I have actually been diagnosed with Crohn’s for almost twenty years; most of my life.
Read more >Amy’s Young Diagnosis Story: Age 7
Bring diagnosed with Crohn’s or Colitis at a young age can be a scary, daunting experience. Amy gives her insight on what it was like being diagnosed as a young age and if she received much support on her journey.
Read more >Amber’s Young Diagnosis Story: Age 13
I feel that I was very much kept in the dark when it came to my treatments and care. I feel as if I was very much kept protected from the harsh reality and truths of the extents of the disease and the treatments and that this isn’t always the best way. I would have benefitted from being told more, made more aware and generally being a part of my care plan rather than only finding things out at the last minute when at breaking point
Read more >Body Confidence and Beach Days
Us as ostomates when looking at near perfect bodies can find fault in how we look and then there’s that bag. Does this make us any less attractive? Does this make us any less worthy of being able to flash the flesh? Or flash the bag?
Read more >Holiday Packing Checklist
As an ostomate it means I have to prepare for a week’s holiday like an army sergeant. Going away for 7 days means daily changes due to swimming, sea adventures and daily showers. How much do I take?
Read more >Join our community
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